Speaking Honestly With Sick and Dying Children and Adolescents
Unlocking the SilenceBook - 2012
Niethammer, a pediatric hematologist and oncologist and retired professor at the U. of Tübingen, Germany, examines issues related to talking to sick and dying children and adolescents, for physicians, nurses, social workers, teachers, and parents. He explains how children often see illness as punishment, what it means to them when they are in the hospital, how doctors can win their trust, death and dying in their everyday lives, the right to patient autonomy, healthy and sick children's concepts of death, the question of whether to be truthful with them, and their participation in end-of-life decisions.The book is a translation of the German text, Das Sprachlose Kind (2008). Annotation ©2012 Book News, Inc., Portland, OR (booknews.com)
Johns Hopkins University Press
Talking openly with sick and dying children about their illness is always difficult and often agonizing. It is honesty, however, that these children deserve and need. Dietrich Niethammer, a prominent pediatric oncologist, explains why it is so important to speak frankly and respectfully to young patients about their disease.
The question at the heart of this book is how children and adolescents feel and think about death and dying. Dr. Niethammer thoroughly examines the literature on the topic, arguing that children and adolescents not only are capable of discussing their illness but benefit from doing so. Puzzled why it took medical practitioners so long to accept truth-telling in their care of dying children, Niethammer traces the development of this notion from the early twentieth-century work of Sigmund Freud to the discomfort surrounding it still today.
Severely sick children and adolescents think about the consequences of their disease, whether adults discuss it with them or not. When adults remain silent, they do a disservice to the children. Dr. Niethammer urges doctors to practice not in silence and denial but in open communication with ill children, giving the children an opportunity to express their fears and anxieties and to cope with their disease on their own terms.
Dr. Niethammer's compelling personal experiences combined with the latest research make this a compassionate and invaluable resource for physicians, nurses, social workers, teachers, parents—for all who care for sick and dying children and adolescents.